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+ 0 - 0 | § Upcoming dates

April 5th and 7th, Alex has meetings with Occupational and Phyical Therapists to work on improving his eating and gross motor skills.

+ 0 - 0 | § The votes are in!

And the verdict is that sweet potatoes are much better than carrots, by a vote of 1-0!  Yeah!!

+ 0 - 0 | § Belated thanks

I the last year or so, we've received so many gifts and people have helped us out on many occasions, and it occured to us that we have not really sent out any "thank you"s to anyone, even since the baby shower, which come to think of it, was a really long time ago. I'm afraid it's a bit late to send them out now, and to be honest, with all of the hubbub with trips to the hospital and doctors and such, we've lost track of who gave us what. We just wanted everyone to know that we are all very grateful of all of the nice things that people have done for us along the line, and all of those things have made our lives much easier.

Thanks again!

+ 0 - 0 | § An unwanted first...

Alex has his very first viral cold it seems.  He's been coughing a bit, causing him some distress...I'm sure that his incision doesn't feel so well when he has a coughing fit...so yesterday, we ended up at the pediatrician's office for about 3 hours.  They did some bloodwork and a chest x-ray, both of which were normal, so it seems like just a virus.  We were concerned that it could be a bacterial infection, and that it could affect his heart if left on its own.  Luckily, he hasn't had a fever and he seems to be handling the coughs better this morning.

In better news, we got Alex a new toy yesterday...an Exersaucer.  I don't know if anyone has seen one of these, but it's like the old walkers, except the seat that Alex is in is over a saucer, much like the saucer sleds that you see in winter now.  The whole thing rocks if he pushes his feet down.  It also has a whole lot of toys on a toy bar surrounding the seat.  Anyway, we put him in it yesterday and he was thrilled with just one of the toys...that is, until he decided that it was bedtime and he didn't want to play anymore.  We took some pictures...I'm sure we'll get around to posting them here soon.  Oh, and the cats like to sit under the seat in the saucer.  It's pretty funny.

+ 0 - 0 | § It's baaacck!

Today is the day the binky made its comeback!  We talked to Alex's cardiology nurse practitioner and she mentioned that studies showed that kids like Alex (with feeding tubes for long periods of time) actually benefit from the soothing nature of the binky...as a result, she thought that we should keep trying to give it to Alex to see if he'd take it back.  She said that the lack of desire for the binky and the whole fussiness thing could just be a result of the fact that we destroyed Alex's routine for a while, putting him in the hospital in unfamiliar surroundings and of course, the surgery itself.  Anyway, he was going down for a nap and was rooting around, so I tried the binky and it's been in his mouth all afternoon.  It could be a coincidence, but he's also been much happier today, though he seems to be coming down with a cold.  He's been coughing a bit...the doctors aren't too concerned and say that it's most likely viral, so there isn't much to do other than allow him to rest and make sure that he gets his fluids.  Hopefully, it won't get much worse.

Oh, and Dan just scared the crap out of Alex by turning on the Hokey Pokey Elmo...the poor kid will never be able to watch Sesame Street!

+ 0 - 0 | § A shot today, and a visit with the Nurse Practitioner tomorrow

Alex had his synagis shot today, to protect against RSV, a resperatory virus. The shot, as usual went ok, and Alex recovered rather quickly. Tomorrow we're going to Harrisburg to meet with the Cardiac Nurse Practitioner to check Alex out, just to make sure that everything is going ok. All in all, Alex has been taking this all rather well, but we are slightly concerned about a couple of wierd behavioral things, such as him not wanting to take his binky, and all of a sudden, he likes to stick his tongue out ... alot. The tongue thing is actually really cute, really. Alex has been rather cranky lately, with alot of crying, but we keep telling ourselves that this is very understandable considering he had heart surgery less than a week ago, and he's still healing and probably still in a bit of pain. But, these are issues that we'll bring up with the nurse tomorrow, and hopefully, she'll have explanations for us. It's sort of wierd doing this child-raising thing for the first time, not knowing what is normal, what is expected because of his conditions, and what is not expected, and not normal.